Wednesday

June 20, 2012

TODAY has been a good day. I woke up feeling like death, like my blood pressure was low and I would faint and vomit, but all went well at the end of the day. I haven’t been bombarded by suicidal thoughts, I went swimming for an hour, AND I designed a “50th Wedding Anniversary” invitation card for one of my dad’s clients!

I don’t like making invitation cards for his clients. They always want to muddy up the card by adding all their kids’ names (and they’re hispanic guys, so you know that’s usually a lot) and fifty Hail Mary’s and Thanks-Be-To-Jesus prayers on there. Seriously, just invite people! It’s an invitation card! Give them the time, place and date and maybe throw in a “thank you” or “thanks to our kids for putting up with us” or “thank god we’re still married after fifty years; it’s a miracle”. That’s it! I’m proud of being Latina, but damn some of these old-school Catholic country-latino folks’ ways get on my nerves!

It’s tacky and embarrassing guys! You’re messing up my design with all this other mess! But we need the money to pay the light bill, so I did it. I just did it and if felt good just getting it done despite the anxiety. I did it in just three hours too! That’s a feat for me. I’m all “spaced-out” half the time.

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Perfectionism and the Anxious Neurotic

One thing I had to learn from my Ex-Young Therapist is that I need to just get things done without obssessing, especially when the time calls for it! I’m a perfectionist, and despite what I was told about employers loving it when you say you’re a perfectionist, I can tell you perfectionism–I mean hardcore perfectionism–is torture! It is self-sabotage and self-harm at its finest!

A perfectionist mentality maximizes your anxiety, and if you’re mental like me, that’s a lot of anxiety, which leads to less productivity because you end up lying in the ground all catatonic-like thinking you’re having a heart attack or an aneurysm, which makes you not want to do anything anymore. “I can’t do anything right because I can’t do anything perfect!” Mouse says. Well, no shit Mouse.

So today, I set aside my perfectionism, and instead of  trying to make the card look really good, I just tried to make it “somewhat good”. And I got it done! It’s not for me anyway! It’s not my pet project, my baby, my ultimate design. It’s a damn invitation card for country folks!

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Drugs Once Again

I took this picture bellow. It’s a picture of my current “meds” , which reminds me of the argument I had with Mr. Mackey last night. He kept telling me to remember about the drugs and alcohol and I said, “I got it, geez. Am I boozin’ right now? NO! There are wine, vodka and whiskey bottles in the kitchen and I’m not even touching any of it. You don’t have to keep telling me!”

Then I got angry.

“Hold up Mr. Mackey, just hold up a second. If drugs are so bad, why do these licensed doctors give me so many?! I know Mr. Mackey. I know they’re the tested and approved drugs and all that, but why did the psychiatrist want to ADD Risperdal to the mix when I told her about the weeks after the overdose? I mean on top of everything Mr. Mackey?! Hmmm? I said no to her Mr. Mackey. I said no. I mean, I was barely getting off the Wellbutrin then and I know, I should’ve told her, but you can’t even contact her! You have to ‘go to the emergency room’ if you think one of these drugs is killing you or if you think you’re gonna kill yourself. And that emergency room is filled with like a hundred and fifty people despite the maximum capacity being a hundred. And some of those hundred and fifty are wounded with blood and guts and whatnot! But anyway, I said, ‘I just… I think I need to go to the hospital, but maybe not right now. Uhhh, no, no. I’m not right now. I’m not going to overdose again. I’m not sure. I mean, yes right now I’m ok. I’m sure I’m not going to try right now, this very minute, but I’ve been flipping so much. I just don’t want another drug is what I mean.’ So that’s what I said to her Mr. Mackey. I was being my own advocate, I think. Is that decision mmmmmmmkay? Is my decision to stay on what I’m on mmmmmkay? I don’t know. I really don’t Mr. Mackey. Mmmmmmkay, now what do you think?”

Mr. Mackey left, didn’t even answer, just blinked with dumbfounded eyes and floated off. Poof. Flew out of my bedroom window, high above my roof with his big balloon head.

“Mr. Mackey?”

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Sometimes I do think that since I started the Fluoxetin/Prozac–became a part of Prozac nation a month and a half ago–the “depressive symptoms” have improved, well some of them. I don’t even know what I mean by that. That’s how ambiguous these things are. I mean, I have more energy overall, I think. I can get out of bed much easier, but that’s still not easy you still wake up feeling hopeless, having panic attacks and feeling nauseated.

The Wellbutrin could’ve been doing a better job. Doesn’t that name sound funny, like it’ll make you “well”. Then again, I’ve just been bat-shit-crazy  bouncing off the walls going from the depths of hell to the highs of heaven in ways I can’t even describe. I have energy like I’m on crack! I hardly have an appetite. And I’m not sure I like that saying “bat-shit-crazy”. Bats aren’t shitty and they’re not crazy because don’t have such a complex psyche as we do, unless there’s something we don’t know about them and they’re secretly plotting to take us down.

But anyway, how would I be able to measure the efficacy of the “meds” since I don’t get to talk to the psychiatrist until the end of July? And besides, she never does any proper evaluations or anything. Plus, summer has come along! And my body almost always reacts kindly to the Sun or vise versa. And my mom got a janitorial job at a local gym, so I’ve been able to swim more regularly there. Here’s the thing, I was bouncing off the walls five-six-seven weeks ago to the point where I was going to put myself inpatient at one of those horrid state hospital wards. I’ve made it thus far though. The ride’s been bumpy, Himalayas bumpy, but I’m here.

I’m still feeling generally unstable though, so I don’t know. I’m scared.

Shit, considering how this year’s been thus far, considering I still don’t know how Monkey Man L–one of the closest persons to me ever–died and I haven’t been able to let that go, considering the increment of my feelings of worthlessness, considering the immigra–well you get it–considering all that and more, I think I’ve gotten a handle on it as much as I can. And though my anxiety is still sky-high most of the day everyday (hell, it seems to be worse), I think I’m alright today guys!

I’m chip-chip-chip-chipper! haha.

I currently weight 46 pounds, that’s roughly 21 kilos. Here’s a list of the drugs I’m on:

  1. 40mg Fluoxetine/Prozac – A fairly potent Selective Serotonin Re-uptake Inhibitor. Those are the white caps with the little dashed lines. The reason why I have two different kind is because one is a 10mg (I was initially on 20mg, then the psych decided to up it to 40, so I now have the 20mg. It all adds up).
  2. 400mg Carbamazepine/Tegretol – These are the little round yellowish-beige colored pills with the orange circle in the middle. They were initially for the neurological pain I started experiencing two years ago after I got the Bell’s Palsy for the second time and for he third time in January of this year. Oh, snapples! I never got to writing my Bell’s Palsy Part II did I? Hell, I think I’ve promised too many “Part II’s”. I need to stop doing that. Oh get this though. Carbamazepine is an anti-convulsant, so it helps reduce epileptic seizures, yet it’s used for neuropathic pain which is what I have on my face, BUT… BUT… get this: It’s also used as a mood stabilizer! So, it’s of label use is for bipolar disorder. Am I getting a “two for one deal” here. It doesn’t seem so. It seems like this shit my be making my moods flail around and flagellate my soul more?!  (You can read Bell’s Palsy: Don’t Fight It, Just Be Part 1 here)
  3. Drisderol LF 50MU – That’s the green one. This one is actually for the Osteogenesis Imperfecta-OI (aka Brittle Bone Disease, er, Condition). It’s actually a new drug that doctors are trying on patients with Osteoperosis, which I also have due to the OI, but they said it should help. It’s essentially just high absorption vitamin D.The genetecist and the orthopedic doctors discovered that my bone density has gotten even lower since I broke my arm in February. Got, it’s been five months already! We’re already halfway through the year. Anyway, Drisderol is what I take only on Wednesdays: “One capsule by mouth once weekly for three months, then twice a month for three more months.” Wednesdays are the days I designated for the Drisderol.
  4. I ran out of Caltrate and fish-oils but I’m still taking B-12.
Meds

Wednesday’s drugs, mmmkay.

addendum: Oh at the pool today, two old ladies asked my mom how old I am. I was in front of her. Really? I know I’m tiny and use a wheelchair, but I’m not mentally retarded or deaf, well, I’ slightly deaf and mental, but still, ASK ME, DIRECTLY! I used to get really upset when this happened but now I only get mildly upset. Sigh. Ignorance is everywhere.

addendum 2: Speaking of Bell’s Palsy, I got the strangest search term today — “Fiona Apple Bell’s Palsy”. Weird. I don’t think she’s ever had Bell’s Palsy but then I wouldn’t know, would I? Oh well, at least I didn’t get anything about a “hairy Hulk” or “girly Avengers”!

Much love from me and the Mouse, or just twice the love from me, a much more chipper Mouse!

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Art is my salvation.

May 2, 2012

Today has been a nerve wrecking day. I woke up at six in the morning. I don’t know why I’m still bothering taking that Ambien. I will quit soon, I tell myself. But I’m not sleeping.

I woke up, got a banana, mashed it up with almonds and a Kashi cerial and that was my breakfast. Took my new set of 10mg fluoxetine and two 100mg of tegretol, my B12 and Calcium1200+D600 IU. I got down on the floor and organized some paperwork while listening to Garbage. I’ve been having that song “Stupid Girl” in my head all week. I swear, I’d never thought about it that way, but it’s such a “borderline girl” song. It should be called “Stupid Borderline Girl”. ha. It was one of my teenage girl anthems and I swear it always will be, especially now that I call it my “Stupid Borderline Girl” anthem.

Anyway, I reviewed some of the immigration paperwork I had stacked up. It looks like I’ll be seeing the lawyers again on Friday. YAY! I have the money this time. It’s $420 that has to be paid to the “U.S. Department of Homeland Security” for the I-130 form for petition of relative. My brother paid me that amount for helping with the wedding videos and with his IRS files. I’ll explain more of what that immigration form is later. There’s just too much shit to explain in one sitting. Immigration laws are so ugh, how do you say, always changing and indefinitely unpredictable? Illogical? Aggressive, inward or outward? Difficult to read? They’re worse than a borderline! Actually, I shouldn’t even compare and insult my fellow borderlines. ANY borderline would be more reasonable than these outrageous laws!

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I eventually got the stacks in order and then pulled out my appointment slip for today. I was scheduled for a 1pm appointment with endocrinology. I eventually went back to sleep until ten. At that time I was going to the living room and my dad called me. His photography “studio” is in a den area right between my room, the kitchen and the living room. So I have to get through there regardless. It sucks when you don’t know clients are over and your hair is a mess and you’re still in pajamas and get called over to do a business deal of all things.

See, I’ve restored photographs since I was a kid. It’s something I learned to do back in the day before Photoshop was so prominent. So you mainly used airbrushes then and all sorts of cool oil and oil pencil techniques. I love Photoshop though. Anyway, my dad calls me over while I’m still squinting from the light and trying to prop myself awake.

Two men introduced themselves and handed me an old damaged photograph. “How much will you do this for?”

“I’ll have to assess the damage and I’ll give you a quote in a minute.” Fuck! I need to go brush my teeth first.

I brushed my teeth, went out to take Luna to pee and then got back in. “This will cost you $130.00” I explained the level of damage and why I’d charged that much. I actually undervalue my work but I don’t know why people that know my dad seem to think I’m overprising it. These men didn’t though. I’m just complaining from past experiences and the fact that I’m a terrible sales person. And my dad sweetens up clients too much! It gets on my nerves. Well, that was eventually over with!  I gots me a fifty buck deposit so that means I’ll have money to pay for my own appointment today! Woohoo!

I made one of the men sign a contract, thanked them. I then excused myself and went to shower and get ready for my doc appointment.

****

The traffic was hell. What was even more hellish was the community hospital’s parking garage. Seven floors and not one damn spot available! Besides, my mom took me today (she hardly ever does) and I have little patience for her low patience.  Well, people fuckin’ honked from behind and from in front. WHAT THE FUCK PEOPLE!? We’re all in this together, can’t you see!? Baghaghagh.

Eventually, we were in. And it was crowded! I mean CROWDEDEDEDED. It’s a good thing I control my social anxiety more now. It was like a New York subway station on a Yankies game day.

I eventually got called, two hours later. And when the doc–really sweet girl–told me about the possible reactions I might’ve had with my first biphosphonate infusion last year for my Osteogenesis Imperfecta and what they can do to improve my vitamin D deficiency and my osteoperosis, she looked at the computer chart and then back at me and said, “How’s your chest feeling? You’re being followed by cardiology too, right? I see your aorta is dilated!”

WHAT THA FUCK!? Dear god/universe, why don’t you send Zeus again! Please!? Three months ago when he threw his lightning bolt at our house, he missed me.

“No, I’m not being followed by cardiology. I thought my heart was fine.”

“Oh, you’re not being followed? That’s strange.” She looked back at her computer chart, “Oh, hehe, yes… Oh, I’m so sorry. My mistake, your heart is perfectly fine!” She patted me on the knee, “Sorry about that.”

I felt like I’d just gotten me a Dr. Hibbert moment from the Simpsons, when he gives Homer the worst possible diagnosis only to realize his mistake and just does his signature chuckle. “Oh I’m just teasing, oh hoo hoo. heheh hoo hoo.” Yeah.

simpsons-julius-hibbert-edit

Dr. Julius Hibbert

Then she asked if she could examine my bones. (She just wanted to cop a feel on me guys.)

After feeling up my arms and legs and back, she asked me to lift my shirt and started feeling up on my chest. She asked about the malformed, protruding sternum, “And this one’s from birth?”

“Yes it was a prenatal fracture that never healed properly.”

“Is it more pronounced now? As your bone grew, I’m sure it got more pronounced.”

“Yes, yeah it is. When I was a kid, it was hardly noticeable.” Great, now I feel self conscious.

It went well overall though. And I’ll be getting a call from them about some new treatment that might be available for osteoporosis but that may also be helpful in improving my risk of fractures caused by the Osteogenesis Imperfecta (OI).

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I got home and not long after popping my shoes off and lazing down to listen to a little more Garbage, I got a call… from… MR. BILL COLLECTOR!

Remember that awful letter I’d gotten from the university? (Click here if you don’t) Well, yep, they’d wanted to know what I’d planned on doing about paying that money I owe. (If any of you have dealt with this and have any advice, please do give me some. Also, if you’ve heard of the Bill Collector Mafia asking for me in Blogland, tell them I’m not here!) He was really good at not being too pushy though. And I didn’t have a panic attack. Now I just have to figure out what the fuck to do about this.

Moral of my post?

I want to do something artsy fartsy now.

“Art washes away from the soul the dust of everyday life.” ~ Pablo Picasso

I found this too and absolutely loved it:

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addendum: You know what really pisses me off? I mean, irks me. It’s seeing all those fuckin’ McDonalds bags everywhere at every hospital. Why do most hospitals (I don’t know how it is overseas) seem to have a McDonalds in the cafeteria?Really? Really, you’re going to capitalize on people’s health? It’s a fuckin’ hospital! Let the drug and insurance companies do that since they’re experts at it! This HOSPITAL should be promoting HEALTH, not food that really WILL dilate your aorta!

addendum 2: Oh god. oh god. There are two things that have me getting nervous. OH OH OH GOD. MY FIRST APPOINTMENT WITH NEW DR. MALE THERAPIST IS TOMORROW!  And the Bell’s Palsy was getting better but these last few days, NO, NO NO. I’LL MENTION IT LATER. IT’S TOO MUCH.