March 1, 2016
I spent Saturday in Dallas with my brother. We drove up there for a seminar on self development and although I didn’t let my brother know, I was more excited about the road trip than the actual seminar. It was a four hour drive from Houston. We picked up breakfast on the road and I slept for about two hours before waking up as we passed some vacant Texas town. We jammed a lot of our 90s favorites and chatted about relationships, politics and the universe.
I’ve been recovering from bronchitis which I caught a little over a month ago, so I still have sporadic coughing fits that leave me breathless and achy all around my chest and rib cage. When we finally arrived, I was hoping that I wouldn’t be coughing during the entire presentation and fortunately, I didn’t, but that’s because I popped three cough drops in the course of an hour.
After the seminar, we went to eat tacos at a colorful taco spot called Velvet Taco located near downtown Dallas. My brother said it was very hipstery and I chuckled at the thought that he was probably right. I don’t know when the use of “hipster” is appropriate, but in any case, I don’t want to be associated with it. It irks me if I’m ever called that. Oh yeah–TACOS! The tacos were de-fuckin’-li-cious! A mixture of Asian cuisine with the traditional Mexican tortillas (sounds pretty hipstery huh?). I ordered one with chickpeas doused in all sorts of Indian spices and another shrimp taco which was tasty as fuck!
As I reached for one of my tacos, I fell into a coughing spell. I hacked and hacked and heard a crack in my rib. Cough. Cough. Cough. CRACK. Damnit. I know that sound and feeling all too well. Yup, I fractured another rib. I say another because the year before last I fractured three when I slipped getting out of the shower. I think I fractured one last year but I’m not sure how. And I cannot recall how many ribs I’ve fractured in my lifetime.
A fractured rib from coughing is the kind of thing that is common when you have Osteogenesis Imperfecta (OI). I remember a discussion on one of the OI Facebook groups I frequently peruse and occasionally participate in. A guy asked, “what’s the weirdest fracture you’ve had”? One of the most memorable replies I read was a guy who said he fractured his skull while sneezing. I’ve had a hairline fracture on the frontal part of my skull, but at least I got that when I fell out of a car in a drunken stupor. Seems legit, right? Seems earned. But sneezing?! Damn. That beats fractured ribs any day (not that there’s a competition anywhere). Another lady from the group always posts things about her seven year old daughter who has OI. Her kid’s type of OI ranges between the severity of Type II and Type III–the type I have. Well, in one post she mentioned something that her kid had said. It was both adorable and sad. She said, “mommy I don’t get the hiccups. I get the breakups ’cause when I get the hiccups I break a rib.”
So I guess I don’t have bronchitis. I have breakitis. It’s part of the amazing package that is Ms. Mouse, a few broken bones here and there every couple of years or so. I don’t really count the ribs. Those happen all too often these days, for me at least.
What am I getting at? Well, it’s international Rare Disease Day and Osteogenesis Imperfecta aka Brittle Bone Disease aka Lobstein Syndrom is one of the rare “diseases”. I’d rather call it a condition–a rare bone condition.
I thought that this day would be celebrated every year, that it fell on the last day of February, but I just realized it falls exactly on February 29th meaning that it is only celebrated on leap years. I guess the gimmick is rare is only every so often? If you wanna know more you can visit the official website or check out the rare disease Facebook page.
February 28, 2016
My life seems to be at a turning point again, and perhaps that’s why I find myself sitting here in front of my laptop typing away while reassessing my current path. It’s been two years since I posted anything on this here blog. I miss this haven, this little corner of my universe where I could release what stirred within me.
There was, for a while at least, a period when my life’s pieces were falling into place, the puzzle started making a clear picture and I liked the mosaic of colors surrounding me. I had a job working at a community college. I had a boyfriend who I’ll cal CB. That developed into a stable and serious relationship–until it ended two years in of course, but more on that later. I also began to develop a relationship with my brother. I was still in therapy which was consistent and proved to still be helpful. As a result, I was fighting less with my aging father whom I depended on so much (and still do to an extent).
In sum, my life was filling up quickly. I was stuck with so much to do that I simply wasn’t able to sit down to write. And that was fine. I was ok with that. Otherwise, I would’ve made the time.
This isn’t to say I still didn’t deal with what we’ll call borderline symptoms or just the everyday struggles life brings us. This doesn’t mean that the Pretty Little Demons didn’t make an appearance every so often. Not at all. It doesn’t mean that I had a few minor crisis moments. I had my ups and downs, but none like the previous years. Depression would come and stare at me from time to time, but I was able to stare back and roll away. I was able to walk away from most things that weren’t allowing me to have peace. Hey! No suicide attempts at least. Ha!
Work had its moments. The boyfriend and I had our moments. My old cranky dad and I had our moments, my bro and I still had our fights and so on. Since I last posted, I broke some more bones, had a series of three surgeries, won a TV award, bought a new ukulele, became the neighborhood crazy cat lady, broke up with my boyfriend, quit my job and am now in a new, promising romantic relationship…
What the hell am I getting at? Mouse! Wake up. Wait… Oh yeah. I am now more resolved than ever to continue my writing. I had a great conversation with a friend a few days ago and the urge to speak up is rising again. It has been rising in the last two years since I left the blogosphere. But now I feel its pull. The words are present. I also have more time since I’m technically still an unemployed mouse.
Oh sweet moments of life come and go. These last two years have been full of them. The sweet moments continue between the painful ones as I know they will. I know. Asi es la vida.
Well, sleep is beckoning me. More later.
January 30, 2014
Yesterday I got to work from home again. Again, the weather dropped to the 30’s degrees F. Something all Houstonians aren’t accustomed to: schools being closed due to winter storms and sleet (tiny tiny sleet). Considering that I hurt my fractured rib coughing yet AGAIN, this was a good thing for me.
Houston’s weather has always been what I call “bipolar” in the winter, but this year it’s flipping so fast it’s like rapid cycling and the changes are as volatile as the dysregulated emotions of a person diagnosed with borderline personality disorder/emotional dysregulation disorder.
I took plenty of naps, risked a few minutes of my dad yelling at me for going out in the cold while I’m just getting over my cold to get these quick shots on my phone. I took some time to pamper myself and make sure I took my Mucinex for the cough and snot and whatnot.
Today I was off. Went to orthopedics for my fucked-up bone situation, hopefully the topic of my next post.
And… I’m being all girly with this glittery nail polish. I usually HATE glitter but I love this! Life feels good. I’m in a strange, uncharted territory. Le smile, le worry look, le sigh.
It’s 30 degrees this very moment but I’m in my room having cold sweats with muscle rub spread all over my ribs and back. Stinky and sweaty and achy. Ugh.
But alas, I’m in love. And love makes things more tolerable, makes the body stronger.
Well, looks like I’m going back to work on campus tomorrow to shoot an art gallery opening and do all the other things that I do and do not do. Better catch some zzzzzzzz.
January 24, 2014
HOLY SHITBALLS! The last time I wrote a “Borderline Girl Song” series post was over a year ago… I had to search my own entries list HERE to figure out what number I left off at.
I’m coughing and hacking greenish gooey phloem still, and I’m crackin bones in the process, yet I’m high high high HIGH or hypo hypo hypo or both! Yes, both. Same shit, sort of. I’m high on life and speedy typing (NOT Speed). I was crying non stop last weekend. Been giggling and singing all morning. Emotional dysregulation any? Just a bit.
Anyway, I’m high. And content, relatively happy. Fuck. I’ll just say it: In this moment I am happy. (That’s lyrics from an Incubus song FYI)
I’m high on life… and cold medicine, antibiotics for the N1F1 flu that upperecutted me three weeks ago, and half a hydrocodone for my cracked rib (yes I broke a rib coughing, maybe two), and dare I say I’m also high on LOVE…
Pretty Little Demons: Love? Like “romantic love”?
I can’t even hear myself say or phantom the thought but, but, but (breathes), I may be falling in love with someone. This person “asked me out” back in August. (I hate the term dating by the way). That’s one of the reason I’ve gone MIA here on Bloggieland. Too busy with the boyfriend and work.
Falling in love… maybe. Falling in love may be. Falling in love, falling, falling in love. 🙂
I’m sitting here on my bed covered in icy-hot muscle rub, Vicks vapor rub and pillows; three socks, bandage on my right leg, an orange wool scarf, and a laptop on my legs writing to you. I’m writing to tell you that people with Borderline Personality Disorder (or whatever they call it these days) can remain stable for–well, I’ve been relatively stable for a good while now and I’m busy in my “real life”, so I haven’t been able to complete a single post I begin. Started a few, but then had to go do this or that or him. heee.
It was 30 degrees fahrenheit out this morning and it rained all day yesterday so we have sleet. Amber Alerts were sent and schools were closed. Truth is, the sleet melted by noon. We Houstonians can’t handle a little snow or ice. P Mouse is fine with that ’cause I get to work from home today and I ain’t going out in no cold while recovering from a cold in my wheelchair. 🙂 YAYUH.
Anyway, where was I? Oh da song. This week’s Borderline Girl Song post is Dido’s “Thank You”.
I thank him, the guy mentioned above, for having the courage to tell me he had feelings for me/a crush or whatnot. I’m thankful for giving him a chance. I’m thankful that I gave him a chance because therapy helped me help myself give him a chance. And. Here. I. Am. Thankful for being alive, even though shit still pisses me off and I have my low moments (don’t think recovery is like that, I don’t).
In my next post, I’ll tell you who this mystery man is. He’ll be introduced, I promise. I was writing his introduction on Monday actually–on Reverend Martin Luther King Day–but as I just said, I keep getting cut off to do this or that or him. In this case it was him. Too much info? 🙂 Then that evening, my dad and his friend interrupted… No, no, no I’m not explaining myself right. In other words:
On Monday, MLK day, I spent all day with HIM (mystery love) at his place, then that evening when I was back home, I logged on WP and started writing a post, which I will post tomorrow.
Well, here’s my song for this series. I dedicated this to him the other day.
March 23, 2013
… A mental Monkey Man.
Chances are that what I don’t get blogged today, I won’t blog tomorrow, so here I go before another day passes.
Yesterday was the “anniversary” of the day I got the call that Monkey Man was found dead. I don’t even know if I should call it “anniversary”. Something about the connotation of that is upsetting me. So anyway, I’ll just say, a year ago yesterday, I got the news that Monkey Man was no longer with us.
Those of you that followed me back then know the story. I will not repeat it, nor do I want to. Yesterday, I spent most of the therapy session talking about it. And slowly but surely I realize that I am moving past this. The pain will never be completely gone, but I am ok with that now. I am working at managing my life and actually FEEL ALIVE today.
Brunet Young and I discussed so much and I felt relieved. I told her how sometimes I feel “happy” that he’s gone and feel like a “bad” person for that. We later found that maybe “happy” wasn’t the right word. No, not at all.
I cried in front of her for the first time. There are just too many emotions to describe or begin to recognize when someone you love dies this way–by their own hands. And there is A LOT OF ANGER! I for one have dealt with anger management problems all of my life (common in peopole with BPD). She suggested maybe, in a way, I’m relieved, definitely not “happy” about it. And that’s ok. It doesn’t mean I’m, a “bad” person.
Why else would so many of the depressing blog posts on here be about him?
One thing I did this week was draw this portrait in memory him. A.F., his stepsister gave me this picture she took of us sometime in 2006-2007. It was what she calls the “happy summer”. Strangely enough, I was very depressed then, but Monkey Man was glowing and everyone said it was on account of me being there.
The relationship I had with him was so intense, so wonderful, so terrifying, so loving yet so abusive at times. I learned a lot from that relationship.
But I did love him and I know he loved me.
Correction, I do love him. I know he’d be proud of how well things are going for me these days. I found a text he had sent me on my phone about two months ago, it reads:
“It’s ok my love. U r one of the most powerful people i know. I wish i had the strength u have”
Art brings me comfort.
March 12, 2013
I just completed a pen-and-ink portrait of a fellow blogger and friend, Amanda. Here blog, Amanda Has Words, is full of her awesome little poems. Please check ’em out.
I’ve drawn more these last three months. Like most things I get into, I hadn’t sketched for years, had put the pencil down. But I’m back at it again and I’ve decided (let’s hope I don’t change my mind) that I will try making portraits on of my goals as a freelancer.
I have therapy tomorrow and one thing Brunet Young and I discussed were my “abandonment” issues. I know I’ll have to finally resolve some shit from my childhood to move on from this. It seems to me sometimes, that everything that heals me also hurts me.
One thing that’s frustrating me is that my Nemo T-Rex Duck arm has been hella hurtin’. I mean HELLA. And that’s the arm I write/draw with! Damn you Osteogenesis Imperfecta!
If you guys remember (not that I’d expect you to), I fractured my arm February of last year, 2012. Well, apparently, the fracture didn’t heal properly and there is a part of the core that is still disconnect. So essentially, my arm is still a bit broken. Sigh. This is what I mean by the though, “Everything that heals me hurts me”. Why can’t I make art without something hindering me? First it was my music and hearing loss. Now this?
I know I sound upset, and I am, but I’m quite excited about my new illustration goals.
Thanks for the support Amanda!
addendum: if you visit her blog, make sure to ask her about her photography
November 21, 2012
I was a metal-head and a punk, but my appreciation for music goes far beyond that. I was a musician. I guess I should use that in the present tense–I AM a musician. But I have trouble accepting that, always have.
I’m now faced with declined hearing due to the OI. I’m starting to wear my hearing aide more often (I have two but one needs adjustment), particularly when I sing and want to enjoy undertones in music. Going deaf is one of my biggest fears. I often think that I’ll definitely kill myself if that ever happens.
But lately, I’ve been calmer, more generally content–not happy, just content. I don’t like the word happy. My contentment, however, has reached back out to the warm embrace of music, the one thing that has saved my life before.
I picked up my ukulele a few months ago when I was in the dark and the PLDs had moved in again. And though I haven’t played recently, I still plan to play it and eventually maybe write songs again. Most of my songs start off as poems anyway, so maybe (just maybe) I could adapt some of my NaPoWriMo poems as uke songs.
Oh right, Lana! So on my Borderline Girl Song Week Thirteen post, I posted a Lana Del Rey Song. Her real name is Lizzy Grant. In that post, I called her pretentious but good. I suppose though, that pretentious is just a label given to any musician that takes their music seriously. So I will back away from that word. I’ve been listening to her more and more. Surprisingly, despite my minuscule stature, I sing better in her register, or rather, women who sing in lower, contralto registers like two of my favorites–Amy Winehouse and Fiona Apple.
I’m liking her more and more. I want to sing again and shout out loud. But I’m afraid. Afraid I’ll fail. Afraid I’ll quit like I have before. I can’t let the fear of my hearing loss take control of my actions though.
Here she is singing live. Oh, yeah, and it turns out she CAN sing very well live. It just depends.
November 19, 2012
When I got to the psychology clinic at the university, there was no one at the front desk. In fact, the doors for the clinic were locked. I panicked for a few seconds and wondered if I had made a mistake and the offices would be closed for Thanksgiving. But the other clinic next door was open and students were on campus.
It took almost half an hour to finally get someone to let me in. By the time I got in, it was nearly 11:30. My appointment was for eleven. Turns out I was probably the only client scheduled for that day and my therapist had put me down for 1:00 pm instead of 11:00. So there was a communication issue. I kept telling myself that I should have called her Friday to confirm, but I can’t beat myself about something so minute.
Afterward, I headed to the hospital with my dad. He can get very naggy but here’s always there to help. We didn’t have to wait too long. Usually it’s about three to four hours, but we only had to wait about an hour-and-a-half.
The doc looked at my jaw and said everything looked like it’s healing up well. I got no follow-up! Unless there’s a problem, then I should call and schedule. But I don’t think I’ll have to go back to that clinic ever again! Let’s hope not.
The jaw saga is coming to an end! And I have rescheduled with the therapist for tomorrow.
On another note, my jaw is currently hurting really bad. waaaah.
Oh, but here’s a quick sketch I drew of my dad while he fell asleep waiting in the hospital with me. (Forgot to draw his glasses.)
addendum: I can’t believe I forgot to mention Carter. I was having a lot of pain and left my purse in the car. That’s where I had my pain med. So my dad went down to the parking lot to get it for me. Since it was such a beautiful day and the doctors were at lunch, I went down with him. I waiting near the tunnel by a construction site on the front of the hospital. And this middle-aged black man comes up to me and asks if I’m waiting for my ride. I said I was waiting on my dad. He kept telling me how blessed he was. Then he said, “I just got out of prison yesterday. Thirty-five years, and I’m not going back”. We chatted for a bit about why we were at the hospital, and I told him to take care. He said he was so very happy to meet me and you could tell he really meant it. 🙂 The end.