I spent Saturday in Dallas with my brother. We drove up there for a seminar on self development and although I didn’t let my brother know, I was more excited about the road trip than the actual seminar. It was a four hour drive from Houston. We picked up breakfast on the road and I slept for about two hours before waking up as we passed some vacant Texas town. We jammed a lot of our 90s favorites and chatted about relationships, politics and the universe.

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I’ve been recovering from bronchitis which I caught a little over a month ago, so I still have sporadic coughing fits that leave me breathless and achy all around my chest and rib cage. When we finally arrived, I was hoping that I wouldn’t be coughing during the entire presentation and fortunately, I didn’t, but that’s because I popped three cough drops in the course of an hour.

IMG_2436

After the seminar, we went to eat tacos at a colorful taco spot called Velvet Taco located near downtown Dallas. My brother said it was very hipstery and I chuckled at the thought that he was probably right. I don’t know when the use of “hipster” is appropriate, but in any case, I don’t want to be associated with it. It irks me if I’m ever called that. Oh yeah–TACOS! The tacos were de-fuckin’-li-cious! A mixture of Asian cuisine with the traditional Mexican tortillas (sounds pretty hipstery huh?). I ordered one with chickpeas doused in all sorts of Indian spices and another shrimp taco which was tasty as fuck!

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As I reached for one of my tacos, I fell into a coughing spell.  I hacked and hacked and heard a crack in my rib. Cough. Cough. Cough. CRACK. Damnit. I know that sound and feeling all too well. Yup, I fractured another rib. I say another because the year before last I fractured three when I slipped getting out of the shower. I think I fractured one last year but I’m not sure how. And I cannot recall how many ribs I’ve fractured in my lifetime.

A fractured rib from coughing is the kind of thing that is common when you have Osteogenesis Imperfecta (OI). I remember a discussion on one of the OI Facebook groups I frequently peruse and occasionally participate in. A guy asked, “what’s the weirdest fracture you’ve had”? One of the most memorable replies I read was a guy who said he fractured his skull while sneezing. I’ve had a hairline fracture on the frontal part of my skull, but at least I got that when I fell out of a car in a drunken stupor. Seems legit, right? Seems earned. But sneezing?! Damn. That beats fractured ribs any day (not that there’s a competition anywhere). Another lady from the group always posts things about her seven year old daughter who has OI. Her kid’s type of OI ranges between the severity of Type II and Type III–the type I have. Well, in one post she mentioned something that her kid had said. It was both adorable and sad. She said, “mommy I don’t get the hiccups. I get the breakups ’cause when I get the hiccups I break a rib.”

So I guess I don’t have bronchitis. I have breakitis. It’s part of the amazing package that is Ms. Mouse, a few broken bones here and there every couple of years or so. I don’t really count the ribs. Those happen all too often these days, for me at least.

What am I getting at? Well, it’s international Rare Disease Day and Osteogenesis Imperfecta aka Brittle Bone Disease aka Lobstein Syndrom is one of the rare “diseases”. I’d rather call it a condition–a rare bone condition.

I thought that this day would be celebrated every year, that it fell on the last day of February, but I just realized it falls exactly on February 29th meaning that it is only celebrated on leap years. I guess the gimmick is rare is only every so often? If you wanna know more you can visit the official website or check out the rare disease Facebook page.

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Here’s the first post I made about Rare Disease Day back in 2012.

 

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Sinterklaas reblogged

December 23, 2012

I’ve been a terrible, lazy blogger as of late. I know. I haven’t even been reading from my favorite bloggies. Truth is, a lot is going on and I do want to share much of it, but I don’t know… Thankfully, I dont have a head full of PLDs (Pretty Little Demons) right now. I still feel better than I was several months ago, despite some terrible days these past two weeks.

I haven’t self-harmed in several weeks, almost two months I think–the last time being a burning incident triggered by booze and thoughts of Monkey Man. So anyway, that’s great that I haven’t! No major suicidal ideations either!

A lot is happening. And well, I want to blog some of it–MUCH of it– but for now, I’m rethinking this whole blog. (yeah, again). And thus, I’ll continue being lazy about it, at least until this White Baby Jesus thing is over with. So here is another one of my very first posts from last year. I was trying to develop my illustration style then (and still am). But here I actually sketched on the computer before it gave up on me in May. Anyway, I think this is a funny one and I hope you think so too.

Hope you all the best!

~Mouse love

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p.s. I just realized this isn’t the best post to re-blog considering the horror that happened at Sandy Hook Elementary. Being a kid is tough and I can’t even imagine… I got severely triggered by that–I’m talking trigger among triggers– it was bad. And I can only hope those kids who survived and their families/loved ones heal one day. It’s… ugh… I’ll shut up… Please don’t take offence. None was meant. This story is meant mostly to be lighthearted, albeit true and somewhat sad. It’s gotta be at least a little melancholic: I’m the MMM.

Melancholically Manic Mouse

There’s always that one elementary school teacher you hear about somewhere, the one that murders her students and their wild but fragile imaginations by telling them Santa is a hoax; that his slaved sweatshop elves and reindeer are also a hoax, AND, that they should go home and shame their parents. I read about such story not too long ago. I can’t blame her. Sometimes the scrooge and Grinch in us comes out.

I’m reminded about the time I tried to tell my third-grade classmates about Santa’s non-existence. It didn’t go so well, obviously.

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Firstly, I’m Colombian. And Colombians–at least when I was a kid in the late eighties–don’t celebrate Christmas with Santa Clause. People do put him on Christmas trees, little figurines are sold for decoration, you can hear his bells in shopping plazas, but he’s treated more as an uninvited guest, the bawdy drunken relative–distant relative–you let…

View original post 1,407 more words

Biometrics Are IN!

November 27, 2012

BOOYAH!

They are in!

My fuckin’ FABULOUS finger prints are in! My hand prints, finger prints and a picture of my geeky face in a blue long-sleeve, corduroy, polo-style shirt have been submitted into the gubernatorial vortex.

WHEW! It. Is. Done.

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I haven’t been updating much on the immigration situation because my focus was on getting stable enough to function and get all the paperwork in. In case you’re new and are just now reading, I am an immigrant, an undocumented immigrant to say the very least. I’ve lived in Texas since I was five years old, roughly twenty-two years, but who’s counting right? *cough*

Back in June, President Obama made a sly move to get a head start in the 2012 elections–he signed an executive order for DACA (deferred action for childhood arrivals) meaning that, a) undocumented aka “illegal” immigrants who came to the U.S. prior to the age of sixteen would be deferred/protected by law from deportation proceedings and, b) they would, by discretionary case, receive a work permit so they (I) can work legally in the United States.

I currently cannot work “legally”. It is a difficult situation to be in as I mentioned in my posts “P Is in SHOCK! UTTER FUCKIN’ SHOCK!” and “P Is in SHOCK! UTTER FUCKIN’ SHOCK! …. But then remembers…”

Most of my friends and acquaintances who are in the same boat either work as waiters, house keepers (like my mother did), janitors (like my father did), construction or farm worker etc.–all jobs I cannot do in a wheelchair. My only options, out of desperation, were to try and freelance. But being mental and having severe anxiety on top of transportation issues makes freelancing extremely difficult. Besides, I needed more discipline.

Since I graduated college in May of 2011, my freelance jobs have added to nearly nothing. I tried websites like e-lance and all this other shit I can’t remember. I spend hours on those sites, touching up my resumé, putting up samples of my work, only to find that at the end of the process, I was always asked for a Social Security number which I obviously do not have.

It became another brick added to the weight of the depression that eventually knocked me down in May. But then, alas, June came with the news of Obama’s signature. I’m not an Obamacrat, I’ll tell you straight up. I’m with the rebel alliance and Jedi nights, not the empire. Besides, Obama had promised several activist groups (some of which I was part of) that he would sign this YEARS ago, but as a true politician, he did not until this election year.

Anywho, I’m not goin’ into my political or social ideals in detail since that is not the focus of my blog. I established at least that from the beginningWhat I do want to share is MY STORY.

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In mid-October I received such wonderful birthday presents!

I got some stretchy pants from my mama, a poem from Angel; I got to see Fiona Apple LIVE with my bro who bought the tickets last-minute; I got a beautiful painting of Mermaid P mailed to moi from Le Sailor–LOOK HERE and I got the DACA application completed and mailed out. That to me was a wonderful gift. They all were.

In April, just before my suck-ass and shameful death attempt, when I thought I couldn’t fall further into depression, I got hooked up with a “job” and felt excitement followed by failure crushing me with the culmination of the second day of work, the day I got fired. I was only an intern, hence the legalities not being clear up and therefore they were not strict in mu application. That’s why I wasn’t asked for my SSI number. Plus, Mansie practically got me that job, a job that only lasted two days.

****

Sixty days after Obama’s June executive order, the DACA law went into effect. To cut my rambling a little short, I have had a long process applying for DACA since September, but I finally had my biometrics appointment today!

The biometrics proceeding is basically when USCIS, the Immigration and Citizenship Services department calls you in to take a photo of you, mark your fingerprints and so on, you know, Big Brother type shit . The dude who fingerprinted me was wearing blue latex gloves like he was about to give me an enema. I ranted on my MsMouse Facebook as follows (note the terrible grammar ’cause I was on a not-so-smartphone that kept auto-correcting me in my agitated state):

My rant for today: It’s so hard having to depend on my dad for SO much! I’m grateful that he’s here, but he’s extremely overbearing and has become more stubborn with age (he’s nearly 70). The biometrics appointment went well even though my dad and I got into an arguedment on the way to the US immigration dept office. It went super fast. Yaaaay!

But fuck anyone who thinks I, or anyone like me should be deported. Twenty two ducking years for this and I’ll still as a non-legal resident, only in immigrant with DACA and work permit. At least ill have that thought. And I can’t wait to finally have a job and a little more freedom! Wooohoo.Fuck you govt for playing with our lives! For controlling my live like a piece in a board game!End rant.

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And that is that! I’m on my way to being more of an adult. I feel as though my entire life I haven’t been given room to grow, to spread out and show my inner beauty. This is why I feel so child-like. It’s not a “bad” thing to be child-like, but what I mean is, I’ve always felt restricted like a child. I’ve felt things that should be entitled to me weren’t. I’m an angry little mouse on a tiny, albeit heavy, leash and the cheese is only a foot away. (Godamn I love cheese!)
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Hopefully in a month’s time, I’ll be receiving a social security number along with my work permit! Nope guys, no green card or “legal status” yet. I’ll still technically be an “illegal,” only an “illegal” who can work “legally” (I prefer undocumented).
And ain’t that an oxymoron? That’s politics for ya…
Here’s a little sketch I did on my not-so-smart-smartphone that my bro’s sweet girlfriend gave me before my surgery!
Anyone know of any good and cheap/free sketching apps for Andriod? This one isn’t too great. But I like that you can’t be precise; it makes me less perfectionistic  less critical and quicker. heheh. The scribble at the right surrounding the MsMouse is supposed to say “ILLEGAL”. Try and figure out which part of the tail is the letter G and/or A.
Mouse love

ILLEGAL MsMouse
2012 (c) paz
I am still undocumented aka “illegal”

Edit 5:53pm 11.22.2011:

This is my introduction to the blogosphere.

There are a total of what, twenty billion blogs out there? Twenty eight trillion maybe, to be sure? And most of these are far from being hot, hardly lukewarm. And the world doesn’t need any more lukewarm bloggers popping out like malnourished crack babies. I’ve never really even enjoyed being lukewarm and though I’ve never been a malnourished, lukewarm crack baby, I imagine I wouldn’t enjoy that either. But to you, and often times to me, it doesn’t really matter what I do or don’t enjoy.

Phew.

So I begin my blogging journey. I begin by wondering if I may as well continue writing like a madman—lost to the world in my nonsensical, ranting and raving–battering my poor, hapless notebooks.

A part of me rebels though. I get tired of that lonely rambling. I get tired of putting it aside as hogwash.

****

I want this to have a clear purpose, a focus. And I think what better focus than to share my whacked-out thoughts on the WORLD WIDE WEB!

THE WORLD NEEDS TO KNOW THESE WACKY THOUGHTS!

Plus, I can stick my timid, mutant turtle neck out just a little from under the shell of anonymity. It would be good for my crawling self-esteem.

But the true motivator here is the fear that I’m at a breaking point again. And maybe I have something of value to share? If not, then at least I’ll be writing again.

Now that I finally decided to open this account, my self talk went a little like this:

“Well, it’s done. You’re signed in now. What hell are you going to make this about? Yourself? Fuck no. There’s lots of shit in this world you wanna talk about. No? Well, what do you think to get out of it? What’s the point in it? To fuel your narcissism, yes? Come on, you know you want to. You know you do. No really though, I don’t. Yeah really though. Are you really that self-absorbed, you punk ass? Yes. Yes I am”

****

Most writers find an intimate experience in the process of laying words to rest–to rest in the world, the solitude, the page– all transmitting and transcending the inner being to the unknown, endless landscape that is this universe, the mind, the infinite particles of thought.

But the truth is, despite this intimacy, I suspect most people who write also have a deep need to speak and be heard; that somewhere deep down (even if they refuse to admit it) they want to drag people into their world. They too are narcissistic. In kinder words though, people who enjoy writing want to share that intimate experience with others.

****

“Maybe I’ll really enjoy it”, I thought. And since I’m in desperate need of an unchained creative outlet (seriously, this blog may become my only outlet for maintaining sanity) I figured, “Eh fuck it, I’ma do this shit! I’m gonna write to my heart’s content“.

The dilemma is, I’m a very private person. Any kind of personal exposure is terrifying for me, even with Facebook occasionally tempting me to whip out my dirty (I mean splattered with virally infectious verbal diarrhea dirty) drawers. And if I ever did secretly want to start a blog, which I’m pretty sure I did, I always ran from the idea in fear that it would become a spiraling vortex into my strange little world, into my swirling mind.

I would be giving others a ticket to enter my thoughts, to judge me from every angle until my longed-for-death. I’d end up having to wear an anti-mind-reading helmet made of aluminum foil and toothpaste.

So, I told myself: Write, but the personal is forbidden!

HA!

To make things worse, I’ve been encouraged to write about myself in the last few years. Two years ago, my brother’s co-worker told him to tell me that I should write a memoir. For all she knows, I could be illiterate. She’s never even met me!

I even had a complete stranger say this to me: “Hey you! Yeah YOU. YOU, you. You should write about YOU!” 

Ugh, I’m guessing all this is because I’m somehow “special”. Trust me, I’m not that special, please don’t inflate my ears with such nonsense. I did find out I was in SPECIAL ED in tenth grade and it confirmed my suspicions that I am mentally retarded. But this is another kind of special.

Anyway, here I am writing about myself.

But I don’t want to take myself too seriously. I really don’t. Anyone who knows me well enough knows that I’m a joker. I enjoy kicking back my child-sized shoes and laughing at the absurdities of this world, and most of all, the absurdities of my creation.

I’m REALLY not THAT special. Subtract the special-ed part from school and I get pretty close to not being special at all.

One thing I do know is that I plan to enjoy myself and hopefully learn from this. If this dies here, however, it dies. If it lives as a serious, boring or humorous, self-deprecating facet of me, then it lives.

In any case, without further ado, I present to you my…

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2011 (c) paz
My very first sketch/version of the Mouse before I’d even named the blog. Butt-crack chinned guy in the bottom right (yeah the creepy one) is one of my first PLDs (Pretty Little Demons). They’ve been altered since.

So, what the hell is this?! The paragraphs above were written in November of 2011.

This was my very first post, an introduction of sorts. I never even published it then, but it’s been saved here, an ENTIRE YEAR!

When I sat in front of the glaring blue light of the computer screen a year ago, I was covered in darkness. The only thing lighting me was the screen. The depression had hit again and I was falling deep into my little mouse hole. I was reading an awesome illustration blog then called My Medicated Cartoon LifeIt’s written (or was written) by an animator of children’s T.V. programming. He dealt with deep depression for many years, most of his life actually. I could relate to so much of what he wrote.

That blog inspired me to open up my own blog here on WordPress. I didn’t do anything with it for days. It just sat here all lonely–an abandoned dumpster baby. It became a malnourished little baby, the very thing I didn’t want.

BUT, here I am a year later. My baby has grown. Over ten-thousand views! I can’t believe I’ve written for this long. I hardly ever stick to something for this long. One thing I didn’t mention in the original post was that at the time, I had recently finished reading Marjane Satrapi’s graphic/illustrated memoir, Percepolis which, along with Allie Brosh’s hilarious blog, had also given me inspiration for my blog.

Here’s to writing, blogging, sharing and loving!

More than “lukewarm” blogs, I found a ton of really talented, amazing writers, photographers, illustrators, artists, humorists and like-minded mental-brainiacs. I’ve made some really wonderful friends I didn’t expect to gain! I also got the chance to write as a Canvas author and be part of their wonderful mental health community.

And of course, I appreciate everyone who’s passed through this little year-old blog.

Melancholically Manic Mouse, born November 22, 2011. HAPPY BIRTHDAY LITTLE GUY! I’m thankful that you came to life here.

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Maaan, that was saccharin! I don’t like tears… I better go stuff myself with more stuffing.

Mouse love

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And to review my year in blogging, here is a list of the blog’s categories. CLICK DAMN YOU:

Humor | Memoirs |Mental Health Files | The Immigrant Files | Disability & Chronic Illness | Comicy & Doodly | Poetry Photos

Last Thursday I meant to write about my trip to therapy but I got distracted by the insanity of Le Clown’s blogroll contest. I now have to go to rehab for WP addiction. (It was fun though Le Clown, it really was.)

Anywho, I did take pictures of my trip to therapy last week. Again, it was with my crappy Nokia 5230 (it’s not THAT crappy). I had a lovely ride. It was a gorgeous day–one of those days where you feel the Houston heat and humidity suffocating you. “Asphyxiate on this, suckas!” says the southern Sun. You know, like the living in a sweaty armpit metaphor I used a while back? Yeah, it was one of those armpit living days.

I was all ready for therapy, ready to bitch and moan. But I ended up taking the bus late. I arrived at Wheeler station (near downtown) and realized, I wasn’t going to make it on time.

Wheeler Station. You can see downtown in the background.  (c)paz/mmm

Some people carry umbrellas ’cause it’s so damn hot.  Someone should’ve told him it’s a stupid idea to carry a BLACK umbrella since black absorbs more heat, but I wasn’t the asshole to do it.

Once I got to Wheeler Station, I arrived at the MetroRail train heading downtown towards the downtown transit center. I hopped in the northbound train.

The lady in the striped dress helped me out when I nearly got crushed by the sliding doors. Had I not been in my wheelchair, I could’ve been sawed in half (not really, but the image is striking, isn’t it?).

Once I arrived at the downtown transit center and REALLY did get hit by the sliding door, I ran into the lady with the dress again. I also ran into another lady with a baby in a stroller. I wanted to take a picture but was too shy. I also didn’t want attitude; lady looked like she had attitude and might of said something like, “Da hell ya takin’ a pict-sha of my babey fo’?!”

So I just let his sleeping, curly-haired cuteness be.

I had to cross Main Street to get to the transit center and as I did that, I noticed there were cops arresting this dude off on the right parking lot. So I quickly took out my phone and thought to myself, “this is blog material, must take photo now before the cops see”. I think they still noticed I was taking a picture of them.

But get this, lady in the striped dress runs next to me saying, “Girl, you can’t be tweetin’ and crossin’ the street at the same time! Come on now!” I was about to say that I was actually takin’ a picture of the cops and that I don’t even have a Twitter account or internet on my phone to begin with. But I just nodded at her. She did save my life earlier.

The cops noticed I was taking a picture anyway. Damn! Oh wells… Can you see the three feet high perspective I got going on?

As I waited for my last bus (yes, I take a bus, a train and another bus), I called the university psychology research and services clinic to tell them I’d be running “about fifteen minutes late”. Ha! They should know I’m terrible and guesstimating time.

Yeah, I really fucked up on this one. I was trying to be covert about my picture taking, but the lady saw me anyway. That’s why my hand came out in the picture. Fuck!

And here’s where I make my social commentary. The majority of the people that take the bus in the area where I live are 1) latino, 2) black, 3) asian. I wonder why? *cough*

When you get to the university, you only see black folks on the bus because the university is near a historically black part of town called Third Ward (my dad thought it was Third World; he can’t understand English that well). It’s a poor area. But I love it in many ways.

I live in the far southwest side though, so I don’t get much of Third Ward anymore. I did when I was living at the university, but now that I’m back with my old folks, I don’t. Well, I do when I go to therapy now. And downtown, near the oil towers, it is a little different. You see a lot of nurses and businessmen–mainly white–and a grand ethic mix is only off to the side.

It’s funny how little certain things have changed. Third Ward is still poor and black. Downtown oil towers are still run by old, rich men.

This is the part where half a dozen pigeons begged me to feed them. I was ready to take AMAZING, head-exploding photos (because that’s what I do), but my damn phone ran out of battery juice. So I was left picture-less and the pigeons where left hungry.

Turns out I got to therapy 40 minutes late! Forty minutes for a fifty minute session! That’s nearly an hour-and-a-half bus ride. Needless to say, we had to reschedule for tomorrow. I won’t be late this time! I’ll tell you though, I used up those ten minutes like never before. It’s a good thing I’ve been hyped, ’cause I was able to bitch and moan a mile a minute.

I didn’t completely loose my trip to the uni though. I went to the student center and signed up in line at the academic records to get my transcript for the DACA application (Deferred Action for Childhood Arrivals) I’m filling out for immigration. They withheld it because I still owe the Debt Collector Mafia two thousand dollars. 😦 Fuck you bill collectors! Let me get my transcripts!

So I zipped my little ass over to the law clinic–where I’m getting free legal advice (YEAH! YEAH!)–and I asked about the lawyer. I schedule for today. So after this, I shall be getting ready to go see the lawyer. Wish me luck.

Ooooh, and who’s the lovely lady you ask? It’s none other than the magnificent Ringmistress (aka Sara Draws) over at Laments and Lullabies. It’s her birthday today and I dedicate these photos to her. 😉

These less-than-mediocre photos are for you lovely lady! Happy barfday! (don’t barf too much now)

Mouse love

Le Clown’s Contest

August 29, 2012

Bloggies! So there’s this Le Clown dude who thinks he’s a demi-god or some shit. He has a contest going on RIGHT NOW. Please go to Le Clown’s blog (linked here and in the Canvas  post) and write “like” under the comments section where Ruby has commented. Canvas, contestant # 3, could use more eyeballs. And it’s not just because I’m a writer there and secretly collect eyeballs. Contrary to popular belief, I do NOT collect nut sacks nor balls of any other kind (except maybe a few therapy squish balls for relaxation). And I do NOT have any kind of obsession with hairy old balls either. Also, Le Clown’s over-inflated ego must be bigger than any ball in existence, including his own. Yeah, he also has one ab, apparently. It’s nothing to brag about. It doesn’t even compare to one of my six abs ’cause I be swimmin’ like a champ!

Wednesday

June 20, 2012

TODAY has been a good day. I woke up feeling like death, like my blood pressure was low and I would faint and vomit, but all went well at the end of the day. I haven’t been bombarded by suicidal thoughts, I went swimming for an hour, AND I designed a “50th Wedding Anniversary” invitation card for one of my dad’s clients!

I don’t like making invitation cards for his clients. They always want to muddy up the card by adding all their kids’ names (and they’re hispanic guys, so you know that’s usually a lot) and fifty Hail Mary’s and Thanks-Be-To-Jesus prayers on there. Seriously, just invite people! It’s an invitation card! Give them the time, place and date and maybe throw in a “thank you” or “thanks to our kids for putting up with us” or “thank god we’re still married after fifty years; it’s a miracle”. That’s it! I’m proud of being Latina, but damn some of these old-school Catholic country-latino folks’ ways get on my nerves!

It’s tacky and embarrassing guys! You’re messing up my design with all this other mess! But we need the money to pay the light bill, so I did it. I just did it and if felt good just getting it done despite the anxiety. I did it in just three hours too! That’s a feat for me. I’m all “spaced-out” half the time.

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Perfectionism and the Anxious Neurotic

One thing I had to learn from my Ex-Young Therapist is that I need to just get things done without obssessing, especially when the time calls for it! I’m a perfectionist, and despite what I was told about employers loving it when you say you’re a perfectionist, I can tell you perfectionism–I mean hardcore perfectionism–is torture! It is self-sabotage and self-harm at its finest!

A perfectionist mentality maximizes your anxiety, and if you’re mental like me, that’s a lot of anxiety, which leads to less productivity because you end up lying in the ground all catatonic-like thinking you’re having a heart attack or an aneurysm, which makes you not want to do anything anymore. “I can’t do anything right because I can’t do anything perfect!” Mouse says. Well, no shit Mouse.

So today, I set aside my perfectionism, and instead of  trying to make the card look really good, I just tried to make it “somewhat good”. And I got it done! It’s not for me anyway! It’s not my pet project, my baby, my ultimate design. It’s a damn invitation card for country folks!

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Drugs Once Again

I took this picture bellow. It’s a picture of my current “meds” , which reminds me of the argument I had with Mr. Mackey last night. He kept telling me to remember about the drugs and alcohol and I said, “I got it, geez. Am I boozin’ right now? NO! There are wine, vodka and whiskey bottles in the kitchen and I’m not even touching any of it. You don’t have to keep telling me!”

Then I got angry.

“Hold up Mr. Mackey, just hold up a second. If drugs are so bad, why do these licensed doctors give me so many?! I know Mr. Mackey. I know they’re the tested and approved drugs and all that, but why did the psychiatrist want to ADD Risperdal to the mix when I told her about the weeks after the overdose? I mean on top of everything Mr. Mackey?! Hmmm? I said no to her Mr. Mackey. I said no. I mean, I was barely getting off the Wellbutrin then and I know, I should’ve told her, but you can’t even contact her! You have to ‘go to the emergency room’ if you think one of these drugs is killing you or if you think you’re gonna kill yourself. And that emergency room is filled with like a hundred and fifty people despite the maximum capacity being a hundred. And some of those hundred and fifty are wounded with blood and guts and whatnot! But anyway, I said, ‘I just… I think I need to go to the hospital, but maybe not right now. Uhhh, no, no. I’m not right now. I’m not going to overdose again. I’m not sure. I mean, yes right now I’m ok. I’m sure I’m not going to try right now, this very minute, but I’ve been flipping so much. I just don’t want another drug is what I mean.’ So that’s what I said to her Mr. Mackey. I was being my own advocate, I think. Is that decision mmmmmmmkay? Is my decision to stay on what I’m on mmmmmkay? I don’t know. I really don’t Mr. Mackey. Mmmmmmkay, now what do you think?”

Mr. Mackey left, didn’t even answer, just blinked with dumbfounded eyes and floated off. Poof. Flew out of my bedroom window, high above my roof with his big balloon head.

“Mr. Mackey?”

********

Sometimes I do think that since I started the Fluoxetin/Prozac–became a part of Prozac nation a month and a half ago–the “depressive symptoms” have improved, well some of them. I don’t even know what I mean by that. That’s how ambiguous these things are. I mean, I have more energy overall, I think. I can get out of bed much easier, but that’s still not easy you still wake up feeling hopeless, having panic attacks and feeling nauseated.

The Wellbutrin could’ve been doing a better job. Doesn’t that name sound funny, like it’ll make you “well”. Then again, I’ve just been bat-shit-crazy  bouncing off the walls going from the depths of hell to the highs of heaven in ways I can’t even describe. I have energy like I’m on crack! I hardly have an appetite. And I’m not sure I like that saying “bat-shit-crazy”. Bats aren’t shitty and they’re not crazy because don’t have such a complex psyche as we do, unless there’s something we don’t know about them and they’re secretly plotting to take us down.

But anyway, how would I be able to measure the efficacy of the “meds” since I don’t get to talk to the psychiatrist until the end of July? And besides, she never does any proper evaluations or anything. Plus, summer has come along! And my body almost always reacts kindly to the Sun or vise versa. And my mom got a janitorial job at a local gym, so I’ve been able to swim more regularly there. Here’s the thing, I was bouncing off the walls five-six-seven weeks ago to the point where I was going to put myself inpatient at one of those horrid state hospital wards. I’ve made it thus far though. The ride’s been bumpy, Himalayas bumpy, but I’m here.

I’m still feeling generally unstable though, so I don’t know. I’m scared.

Shit, considering how this year’s been thus far, considering I still don’t know how Monkey Man L–one of the closest persons to me ever–died and I haven’t been able to let that go, considering the increment of my feelings of worthlessness, considering the immigra–well you get it–considering all that and more, I think I’ve gotten a handle on it as much as I can. And though my anxiety is still sky-high most of the day everyday (hell, it seems to be worse), I think I’m alright today guys!

I’m chip-chip-chip-chipper! haha.

I currently weight 46 pounds, that’s roughly 21 kilos. Here’s a list of the drugs I’m on:

  1. 40mg Fluoxetine/Prozac – A fairly potent Selective Serotonin Re-uptake Inhibitor. Those are the white caps with the little dashed lines. The reason why I have two different kind is because one is a 10mg (I was initially on 20mg, then the psych decided to up it to 40, so I now have the 20mg. It all adds up).
  2. 400mg Carbamazepine/Tegretol – These are the little round yellowish-beige colored pills with the orange circle in the middle. They were initially for the neurological pain I started experiencing two years ago after I got the Bell’s Palsy for the second time and for he third time in January of this year. Oh, snapples! I never got to writing my Bell’s Palsy Part II did I? Hell, I think I’ve promised too many “Part II’s”. I need to stop doing that. Oh get this though. Carbamazepine is an anti-convulsant, so it helps reduce epileptic seizures, yet it’s used for neuropathic pain which is what I have on my face, BUT… BUT… get this: It’s also used as a mood stabilizer! So, it’s of label use is for bipolar disorder. Am I getting a “two for one deal” here. It doesn’t seem so. It seems like this shit my be making my moods flail around and flagellate my soul more?!  (You can read Bell’s Palsy: Don’t Fight It, Just Be Part 1 here)
  3. Drisderol LF 50MU – That’s the green one. This one is actually for the Osteogenesis Imperfecta-OI (aka Brittle Bone Disease, er, Condition). It’s actually a new drug that doctors are trying on patients with Osteoperosis, which I also have due to the OI, but they said it should help. It’s essentially just high absorption vitamin D.The genetecist and the orthopedic doctors discovered that my bone density has gotten even lower since I broke my arm in February. Got, it’s been five months already! We’re already halfway through the year. Anyway, Drisderol is what I take only on Wednesdays: “One capsule by mouth once weekly for three months, then twice a month for three more months.” Wednesdays are the days I designated for the Drisderol.
  4. I ran out of Caltrate and fish-oils but I’m still taking B-12.
Meds

Wednesday’s drugs, mmmkay.

addendum: Oh at the pool today, two old ladies asked my mom how old I am. I was in front of her. Really? I know I’m tiny and use a wheelchair, but I’m not mentally retarded or deaf, well, I’ slightly deaf and mental, but still, ASK ME, DIRECTLY! I used to get really upset when this happened but now I only get mildly upset. Sigh. Ignorance is everywhere.

addendum 2: Speaking of Bell’s Palsy, I got the strangest search term today — “Fiona Apple Bell’s Palsy”. Weird. I don’t think she’s ever had Bell’s Palsy but then I wouldn’t know, would I? Oh well, at least I didn’t get anything about a “hairy Hulk” or “girly Avengers”!

Much love from me and the Mouse, or just twice the love from me, a much more chipper Mouse!


********

What?! Did you think that I was done complaining? Oh no, no, no. Please. Those two posts were only my warm-up.

****

So I look down at the book C had slipped on Mansie’s desk for me, “Slavery by Lisa Kristine“. It’s a lovely book–gorgeous photographs. But it’s pretty sad, and by now, my chest is thumping faster, faster than little thumper in Bambi, like a sub-woofer speaker in a low-rider. I mean it is THUMPING! It’s shaking my ribs all up! I had thought I’d maxed out my anxiety at C’s office, but apparently being there in that dark office by myself is only making my smallness more apparent, the darkness just amplifies and the glowing halo behind me seems out of reach.

I look at the window behind me; it’s such a sunny day. I get a text from Mansie, she asks if I can call her after 1:30 instead. At this point, I’m growing increasingly light headed, my breathing gets heavy so I’m sitting there doing my mindfulness and distress tolerance breathing exercise, the only one I’ve manage to master and I go down a little. I figure I better go pee, but the restrooms upstairs aren’t fit for a wheelchair. Sure, I can walk to the stall from my wheelchair like I have before, but I don’t want anything to make me anymore irate. Besides, I need an excuse to get out of sight.

So I’m downstairs in the lobby pacing in my chair after I find a restroom which unfortunately was locked. I’m pacing. I’m breathing in deeply, I’m breathing out slowly. Breathing in deeply, breathing out slowly. 

I’m flushed. I’m heaving. I’m having hot flashes like a woman in menopause; I’m having cold flashes like a bikini model in an ice cold beach; I’m having flashes and shakes in a  hallelujah-I’ve-been-touched-by-Jesus-but-I’m-really-just-having-a-stroke-in-a-pentacostal-church fashion. It’s a good thing the downstairs lobby is a ghost town because if anybody takes one look, they’ll see a disheveled mouse twitching and heaving and mumbling and rolling to and fro in an electric wheelchair.

I call my dad and tell him what just happened. I ask him for advise but he merely says, “I don’t know what to tell you. You know I don’t have an opinion in these things.” That’s his default phrase these days. I know why he says that. It’s basically a defense he’s built in after all of my “explosions” in he past. He doesn’t want to risk saying something that will trigger me, so he says nothing. I tell him I love him and head back upstairs, but not after trying the New Male Therapist and leave a message thanking her for getting me that DBT group. “I still haven’t gotten the letter though… and…” Of course, I sound quivery and like I’m getting ready to cry. So I head back upstairs before I do.

I’m breathing in deeply, I’m breathing out slowly. Breathing in deeply, breathing out slowly. Iiiiiin two-three-four. Ooooout two-three-four. I’m rolling across shiny tile floor, I am pushing the elevator button. Elevator lights up, door opens. I am feeling anxious; I am going in. I am mindful of my surrounding. I am mindful of my actions. I am mindful of my feelings… My feelings are just feelings passing through me like leaves floating across a river… I am…

****

This is where I decide to get on WordPress and Sailor becomes my night in shinning armor, helps me see things a little more balanced, more clearly. Thank you Sailor! See, I tell myself much of what you said Sailor, but it just makes more sense seeing the way you wrote it, having it come from someone else. I guess I need too much reassurance sometimes. But it’s a good thing you said what you said.  And I’ll say it again, you guys, my mental, very mental and only-averagely-mental bloggies are like a first response team.

****

What else? Well, I take D’s picture because by the time I head back up she’s there waiting. I have a good, though rushed and anxious conversation with her and eventually head back downstairs to wait on the MetroLift.

While I’m down there, I call Mansie and we both devise a plan! It’s excellent, or the best we can think of.

Wanna know what it is?

Well… I can’t say!

mehehehe

****

I’m out in the hot sun thirty minutes and damn MetroLift is nowhere to be seen. For a split second I think I see it, but it flashes in front of me like a ghost. Only I’m the one that feels like a ghost, all the people coming in and out of the building and I’m melting into the white light.

****

Fourty minutes later I’m calling the MetroLift dispatch service for the third time and again they’re telling me the cab should be there within ten minutes.

****

I’m on the side of the road, trying to see if the cab has missed it’s turn. Nope, that’s not it. It’s just another damn SUV. By now, I’m hoping a car hits me.

****

I’m on hold with the dispatch. I saw the cab pass me by, but on the OTHER street, not on the street I’m on. “Can you tell them I’m on the Over-Fuckin-Here-Entrance not in the Over-Fuckin-There-Entrance please?” I try not to be angry. It’s not the dispatcher’s fault, but by now I’m in tears.

****

I get home and take my straps off, you know all those straps they put you in. And driver lady says, “hey, please don’t take your straps off”. I’m looking like I’m about to turn into She-Hulk but I maintain. I’m cool.

“Sorry. Didn’t mean to…”

********

And today? Well, today I saw the immigration lawyer! Just one; the other was in a conference. I forgot to bring originals and all this other stuff. But, but, here it goes… I went swimming! I did eight laps in thirty minutes. I’m still having withdrawals from my third day of not watching Battlestar Galactica.

****

Oh no, this blog is becoming what I promised myself it wouldn’t become– a damn journal!

*le mouse sigh*